Epic Pharmacy Fail

I recently discovered that my local pharmacy had been giving me the pediatric dose of Enbrel for the past 6 months! Yup. You read that right. Since January I have been receiving half the amount of medicine that I was suppose to be taking. I only discovered this mistake because I recently switched insurances and was requesting new prescriptions for my new insurance plan. My rheumatologist called me to clarify that I was actually taking the 25 mg "dosing kit," which is very rarely offered anymore, instead Enbrel typically comes in pre-filled syringes or auto-injectors. She was completely shocked about this dosing error, as her prescriptions had all been correct. Therefore, somehow my pharmacy had been giving me the wrong dose, month after month as I refilled it.

Now don't get me wrong. I actually really like my pharmacy. In fact, I found it very hard to call them and complain about this error, but I needed to make sure it wouldn't happen again. The pharmacist was literally speechless and didn't know what to say to me. I have used my local town pharmacy my entire life and even after moving away, I still traveled back home to continue using this pharmacy. It is a small family business and they know my whole medial history which has helped decrease many stresses and hassles over the past 28 years. I have been willing to pay a little extra money, instead of using mail order, to know that my prescriptions are handled correctly, will be ready on time and there are no surprises. Unfortunately, my trust was recently shattered. 

I know how lucky I am that even on half the intended Enbrel dosage, I still have felt OK. I know it could have been a whole lot worse. I am optimistic that now that I am on the correct adult dosage, I should continue to feel even better. Moving forward, I will most certainly check all of my prescriptions more thoroughly! 

The Stages of Hiking with JRA

On Wednesday I went on 7 mile hike. It was a very flat and level hike with little elevation. It was also on well kept, wide trails with few roots or rocks to navigate over.  No problem! I thought. Hiking 7 miles in the woods is something I do not decide to do frequently and as a result I am still recovering. However, throughout this hike, I realized I went through many emotional stages...

The Stages of Hiking with JRA

1. Excitement: I feel great! 3.5 miles each way, no problem. Let's do this! 
2. Wonderment: Nature is beautiful! Look at these trees, birds, the rushing river!
3. Motivation: Already one mile down. This is easy! 
4. Trepidation: My right knee is starting to ache...oh no, not even half way.
5. Reenergized: Sign says 1.8 miles to go! That's nothing!
6. Denial: Both knees and ankles are throbbing, but I must keep walking.
7. Anger: Why is this so hard, it's only 3.5 miles. 
8. Hope: Only .4 miles to go!
9. Fear:  As the path narrows and becomes filled with rocks and roots, I have fear with every step that my knees will give out and I will go tumbling into the river. 
10. Focus: I have to focus on every step I take, all of my effort and energy goes into making each step, no more nature, no more wonderment...
11. Relief: I made it to the top! Hooray! Must Sit Immediately. 
12. Anxiety: I know I have to complete this whole journey again to get home. 
13. Resilience: I have done this once, I can do it again...(and my legs are numb at this point, so it hurts less)
14. Pain: Once again, every step causes throbbing, stabbing and pain in both knees, ankles and my back.
15. Despair: Will this trail ever end...
16. Optimism: I see the bridge at the end of the trail, I can hear cars on the road, we are close!
17. Thankful: Although my body fought me, it did not fail me and I succeeded.
18. Fulfilled: I conquered the trail, conquered my JRA and completed my goal! (Now time for a well-deserved ice cream and bath!)